Help us to help the orphans of medicine!
Good, comprehensive and child-friendly clinical care for children with serious, complex and rare diseases is increasingly at risk in Germany. Even in renowned and traditional children’s hospitals, the situation is worsening from year to year. The Care-for-Rare Foundation is therefore
Dezember 2023 — Our latest film about the genome research funded by the Care-for-Rare Foundation aims to give children with rare diseases around the world hope for a cure. For this film, we reunited with Sarah, one of the many
We show the scientist in the research building Kubus of the Comprehensive Childhood Research Center and introduce our current fellows: Chonlatis Srichumpuang from Chulalongkorn University in Bangkok specializes in haemophilia and congenital blood clotting disorders (thrombophilia), which can lead to strokes
Following the discovery of the first patients with a defect in the interleukin-10 receptor, the Care-for-Rare Foundation has started to help children with severe inflammatory bowel disease worldwide. Together with renowned doctors and scientists in the USA, Canada, Great Britain
We help children with rare diseases Since its foundation, Care-for-Rare has already achieved many milestones, but we still have a long and challenging journey ahead of us. Please support us on our journey! We are grateful for every single contribution.
November 2020 — Almost 900 years ago, Hildegard von Bingen coined the idea that the eye is the window to the human soul. Care-for-Rare is transferring this ancient wisdom into an innovative study to find out which previously unnoticed signs
Clara* is a happy child. She plays with her little brother in the garden, and likes soccer best of all. The other day she suddenly felt nauseous, today she suddenly can’t see properly and walking is difficult for her. The
The corona pandemic poses new challenges for the health care system and also for pediatric medicine. Currently, it is also the “Long-COVID” syndrome that puzzles doctors and scientists and causes suffering in an increasing number of children. Little is known
Please continue to help us! Thanks to grants raised, the Care-for-Rare Foundation is covering a large portion of the laboratory and maintenance costs associated with sequencing that are not covered by health insurance. We thank you for your support. Donate
Network excellence worldwide The international Care-for-Rare Alliance unites physicians and scientists in many institutions and countries in their joint mission: to understand the causes of rare diseases and to develop novel therapeutic strategies. The flagship of these activities is centered