Scolar discovers rare gene mutation The biologist from Iran came to Care-for-Rare as a doctoral student with a current case: a brother and sister suffered from a severe bone marrow dysfunction. The cause was unknown, but Ehsan pursued a hunch.
Impact Assessment
14.02.2023 — Excerpt from the feedback of our award winners and scholarship recipients
Care-for-Rare has strengthened and extended its engagement in South-East Asia
Care-for-Rare has strengthened and extended its engagement in South-East Asia during an important series of events in November this year:3rd International PID Meeting „From Bench to Bedside“: Care-for-Rare Global Alliance Educational Seminar in Kuala Lumpur in cooperation with IPOPI. November 2023 —
4th International Klaus Betke Symposium
March 2023 — As part of an international event series, the Dr. von Hauner Children’s Hospital of the Ludwig-Maximilians-Universität (LMU) organises the Klaus Betke Symposium every two years to draw attention to the importance of rare diseases and personalized therapies
4. International Klaus Betke Symposium
March 2023 — As part of an international event series, the Dr. von Hauner Children’s Hospital of the Ludwig-Maximilians-Universität (LMU) organises the Klaus Betke Symposium every two years to draw attention to the importance of rare diseases and personalized therapies