Help us to help the orphans of medicine!
We show the scientist in the research building Kubus of the Comprehensive Childhood Research Center and introduce our current fellows: Chonlatis Srichumpuang from Chulalongkorn University in Bangkok specializes in haemophilia and congenital blood clotting disorders (thrombophilia), which can lead to strokes
Following the discovery of the first patients with a defect in the interleukin-10 receptor, the Care-for-Rare Foundation has started to help children with severe inflammatory bowel disease worldwide. Together with renowned doctors and scientists in the USA, Canada, Great Britain
November 2020 — Almost 900 years ago, Hildegard von Bingen coined the idea that the eye is the window to the human soul. Care-for-Rare is transferring this ancient wisdom into an innovative study to find out which previously unnoticed signs
Clara* is a happy child. She plays with her little brother in the garden, and likes soccer best of all. The other day she suddenly felt nauseous, today she suddenly can’t see properly and walking is difficult for her. The
The corona pandemic poses new challenges for the health care system and also for pediatric medicine. Currently, it is also the “Long-COVID” syndrome that puzzles doctors and scientists and causes suffering in an increasing number of children. Little is known
Please continue to help us! Thanks to grants raised, the Care-for-Rare Foundation is covering a large portion of the laboratory and maintenance costs associated with sequencing that are not covered by health insurance. We thank you for your support. Donate
In order to raise awareness of rare diseases in Southeast Asia, the Care-for-Rare Foundation together with Chulalongkorn University Bangkok initiated a “German-Thai Alliance for Better Care of Children with Rare Diseases”. For this purpose, Care-for-Rare organized the first international “European
14.02.2023 — Excerpt from the feedback of our award winners and scholarship recipients
Care-for-Rare has strengthened and extended its engagement in South-East Asia during an important series of events in November this year:3rd International PID Meeting „From Bench to Bedside“: Care-for-Rare Global Alliance Educational Seminar in Kuala Lumpur in cooperation with IPOPI. November 2023 —
March 2023 — As part of an international event series, the Dr. von Hauner Children’s Hospital of the Ludwig-Maximilians-Universität (LMU) organises the Klaus Betke Symposium every two years to draw attention to the importance of rare diseases and personalized therapies